25 August 2010

Route Out: A Variation on A Theme

Dear Readers,
It's been a busy day editing some earlier blogs in my drafts folder. I'm struck that I had more to say during week one in recovery than anything I wrote in subsequent weeks. The schedule was grueling, zapped much of my energy by early evening. I went to bed very early. I steadily began to feel some strength return. I discovered I wrote several other blogs in draft but they precede the summer. Maybe I'll finish them soon or store them away for future posting. Their titles are snappy. I

There is an original story spinning in my head about ghosts, set in a Gothic background, where life and death does not seem so black and white. Everyone loves a good ghost story and I have one to share that is immensely entertaining. But before I undertake writing it, I want to leave you with my impressions of my mid-summer dream. 

Much of the following blog is contained in today's other postings. You'll may find many repetitions on the same theme. They're important and need repeating. Nothing like a teacher to drive a point home. I must learn how to organize these blogs better, categorize or tag them and hopefully list them in an easy to access fashion. Blogger must have more functionality than I'm using. I'll learn. Your comments are welcome. Remember tea is always a dialogue. Drop in any time and spread the word.
Peace to you all,
Dee
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While friends and family enjoy and plan their summer vacations, I embarked on a summertime journey. This severe depressive episode has weakened my body, mind, and spirit thus my social life. So off to the partial hospitalization program I go. In hindsight, I should have done this a year ago. This is a courageous decision as my good friends tell me that I'm brave. This is true.

Each day, we are asked what our goal for the day is and my response is "A good cry". The cry I long for though, escapes me. Although, the first day I feel the well inside me begin to leak while I am walking alone. I refer to this as my daily exercise because it is a good five minute walk from one end of the hospital to the other. Naturally, the cafeteria is located at the other end of the hospital. I'm off to meet the smokers who have just inhaled their lunch and have bolted for the fresh air. We're told to walk down to the highway entrance in order to smoke. Yet these young adults have staked a position along a wall far enough away from the formal main entrance of the old building that houses the mental health department. I join them, not proud of the fact, that I'm smoking after quitting for so long. Without the mentally ill, cigarette manufacturers would be without a market in the US. However, smoking is still a social activity among us. A dopamine enhancer. I pull the sunglasses over my wet eyes and join them. Our conversations flow smoothly as I follow them around learning the timing and ropes of the program. Day one passes, no tears are shed.

A sense of routine is being established as I rise at 6 am to be in Salem by 9. It takes that long to shower, iron, dress to have the morning coffee and breakfast before the drive. I'm trying different routes to the hospital, convinced that I will find a quicker commute avoiding the local traffic snarls. By the end of day two, I settle on the fastest route home. The highlight of the day is when I meet the psychiatrist assigned to my case. Let's just call her Dr. Michelle. Her quiet, gentle appearance in the room takes me by surprise. She's low key, very attractive, youthful, tall, lean, and fashionably cool wearing jeans. She walks gracefully as I follow her to an office in the Adolescents Day Program. Here about 20 young people under the age of 18 are gathered creatively in an arts program under the careful observance of a handsome pony-tailed man. There are more kids in this program than are in ours. I take this as a hopeful sign. Early detection means early treatment means a higher quality of life. The kids look up from their arts and crafts following me with their eyes as the doctor sits down in her office. She quickly puts me at ease, informing me of her close professional relationship with my trusted psychiatrist. "I understand you are one of his favorite patients. He emailed me about you." The doctor asks me questions. As I'm answering her questions, as I start to speak, tears begin to flow from the deep well inside of me. We discuss my options and a psycho-pharmaceutical strategy is proposed. I agree.

Dr. Michelle speaks about ECT as another option. (Please, read the posting "ECT: Two Women", March 28, 2010. An award-winning animation by Laura Piraino)  I've learned ECT is a viable solution that works. However, it requires a very strong family and personal support system of care to be effective. The logistics of finding available, attentive, dedicated caregivers is insurmountable for an unmarried, middle age woman without children or a significant other. I pass on ECT now.

Personally, I find it distressing that psychiatrists are referred to and are relegated to the role as psycho-pharmacologists today. Though, I never liked the term "Shrink" either. I believe it invalidates their years of training and their enormous educational time and expenses invested in the competitive study of medicine. I feel it invalidates their professional experiences, and their special calling to a branch of medicine little understood or appreciated by their medical colleagues. Psychiatry is the art of listening, hearing, observing, it's part science, based in hypotheses that's standing on firmer ground as neurological and systemic research of the diseased brain becomes better understood. That is if the entire mental health system doesn't collapse under the burden of a growing demand for mental health services.

 

Psychiatry is always the first for budget cuts, it was the first medical branch to be dismantled in the 80's and the 90's, the first to feel the effects of Wall Street's scheme of privatizing medicine, who are forced to deal with insurance companies that on a good day are basically unregulated banks staffed by low paid, uneducated agents intent on denying patient claims that are a matter of life and death. Of course, they're just doing what their high paying executives tell them to do. Depression is a very, very expensive disease for a patient (and their families) as a psychiatric condition. Let's not forget the pharmaceutical companies who are primarily focused on profitability. Most research is government (tax payer) funded with lobbying by drug companies that allows these tax-payer-funded research costs to be passed onto the consumers at exorbitant drug prices. And what's with their advertising? I remember the days when advertisements by drug companies, gambling of all sorts, lawyers, erectile dysfunction and medical institutions were forbidden to advertise to the public. Now they dominate cable, print and internet marketing with budgets in the billions of dollars, filling the void left by cigarette and hard liquor commercials.

In the meantime, medical schools around the country and around the world, are producing fewer and fewer doctors trained in the specialty of psychiatry. So the number of days in-patient (10) is strictly regulated by insurance companies. In-Patients are barely stable when their 10 days in-house hospitalizations are up. They are transferred  to a PHP to be discharged (ready or not) within 10 days. This barely is enough time for the doctors, nurses and social workers to do their job. That they manage is a testament to their commitment. That patients survive this incorrigible system is a testament to their courage. Those patients who talk get better results than those who do not. We bond to support each other with our commitment to get our essence back and to stabilize physically and emotionally.

By the end of the day, I realize that I'm going to have to be very patient with myself, telling the group, I met my objective. I had a little cry. My well is very deep though. Two young 20-somethings are discharged that afternoon.

That evening, Illa, calls in with support that includes a good kick in the ass, too. "You will make this program work for you! You are going to do it. And that's that!" Though I hardly feel like laughing, she has called upon our past experiences, which brings a smile to my face. I go to bed early. I'm exhausted.

Day three starts with the same goal, to have a good cry. One of our group, that includes another new member, quips "May I ask, what does a bad cry mean?" I laugh, a sign my humor may be returning. By now I'm used to the dirty walls, the worn sofas, the clickety-clack of one of the ancient, struggling air conditioners, and the white noise of the fan. It's all designed to reduce the stuffiness of the room. I learn to bring a sweater despite the rising temperatures outside hovering around 90 degrees. The bulletin boards in the hallway are a chaotic collection of fliers focused on domestic violence, rape and substance abuse. There is nothing about depression or bipolar or similar sources of information, or special hot-lines or support groups posted. I take note of this because every person in the program is at some stage of severe depression.

There are two dorm-sized refrigerators in the "kitchenette" that offers bitter decaffeinated coffee. One is for the brown bag lunch you must bring. The other refrigerator is empty but contains an abundance of tiny half and half thimbles. The same two apples sit in a basket untouched. I take note of a list of food stuffs available to the insured guests. Among these are yogurt, OJ, cereal, milk, etc. so I inquire about getting a yogurt and an OJ on this morning. Shortly, thereafter, an office administrator brings me two small yogurts and a cup sized OJ, which she pilfers from the adolescent program next door. She tells me a food supply order will arrive the next morning. I thank her. 

With an increase dosage of a mood stabilizer, three small meals a day and with the series of  45 minute sessions followed by a 15 minute breaks, I begin to stabilize. It's a mystery to me how or why this therapeutic program works because the topics of "conversations" are not unusual. Stress and time management. Dealing with change. Self-esteem. Cognitive strategies. The copy quality of the handouts and the "from memory" presentations of three social workers tells me, the same "curriculum" has been used for a long time. Only one, talks "at" us. This I find to be an annoying style (not a judgment of the worker or content quality) but I mentally redecorate the room and try not to dose off. This is not true of a couple of the other patients in the group. Sleeping or nodding-off is tolerated. By the end of day four, I've calculated how much one-on -one face time with the various professionals I've had. There are apologies, of course. I understand they'll get to me sooner or later as they manage priorities. I believe it was St. Augustine who said, "The reward of patience is patience." I wonder, once again, if my appearance and presence are working against me. I rarely appear publicly like I'm in crisis. But then again, my public appearances are restricted when I'm crisis. Ultimately, I will and do receive a great deal of special attention, time, consideration and powerful support from the all the professionals involved with my case. By the end of nine days, I don't feel very confident about leaving the program because I'm just beginning to feel stable. Therefore, arrangements are made for me to attend another complimentary day program in Lynn.

Thursday night, the night I have a contract to teach, will be a real test of my stamina because the bridge work being done in Lawrence requires a different route into the city. The ESL class goes exceedingly well as we watch YouTube clips and read about the origins of the tango. We continue with reading "Tuesdays With Morrie" that focuses on the importance of family in dealing with a chronic and degenerative disease. Morrie states unequivocally that without his family, he doesn't know if he'd be able to cope. This strikes at the core of my loneliness and fear. My own family knows nothing about the partial hospitalization and for the most part still have an incredibly unresponsive attitude about mental illness. This saddens me because this disease is genetic, like getting blue or brown or hazel eyes. There is no choice involved and one doesn't really know until college or later whether the gene is yours or not.

I do not function well on six hours of sleep so I awake exhausted on day five. It's a Friday and will mark the turning point for me. There are two new members added to the group. The agenda for the day includes a presentation on Spirituality. This catches my attention. Enter the female Chaplin of the hospital. Let's just call her Jane. She is professional and feminine in appearance, beautiful with her chic framed glasses. Her presence, her inner strength is dynamically tangible. She literally lights up the room. They'll be no sleeping during her presentation. She gets it about mental illness, it strikes at the very essence of your being. Your soul, your spirit. Only those who have experienced deep loss know the truth of this.


Later I would learn that Jane would like to meet me the following week. I readily agree and we have an amazing conversation where I left her office felling validated, welcomed, and with a respected, resourceful  woman to remind me, that above all else, I was to find diverse ways to nurture my soul and spirit and to incorporate this into my daily ritual. She reminds me, that God believes I'm awesome, specially designed and I'm magical. He cries because I cry. This simple perspective of being loved for who I am touches me like nothing in recent memory. I'm charting it out, Jane. Getting in touch with those places and spaces to be part of the joy of nature and the works of the divine.

Where do you find peace to witness the glories with God? Do you remember to give thanks when you do?

 



Entitlement

I wrote this piece in July while events were fresh in my mind.

Every day there is an email from Paula waiting for me. On some days, I'm so tired from the group partial hospitalization program (PHP), that it takes all my effort to make dinner. But when I check my email, there it is, some inspiration or note from her. She is a lifeline of belief and hope. One who gets it. Paula knew I was in trouble, in despair, before I was willing to admit it to myself. There is just something cruel about being stoic. Whether it is a New England trait or one that I inherited from the Irish, I don't really know or care.

Stoic. "Of or pertaining to the school of philosophy founded by Zeno of Citrian around 300 BC, who taught that wise people should be free from passion, unmoved by joy or grief, and submit without complaint to unavoidable necessity or natural law." Well, screw Zeno, whoever he was. His was probably an institution of depressives. Wisdom isn't a 21st century American value or achievement. Yet stoicism lingers in our culture.


Appearances can be deceiving. I isolate. I lose interest in writing. There is no joy or desire to participate in festivities. The mental gymnastics of going from point A to point B overwhelms. The idea of groups or crowds nauseating. Finally, the hopelessness and the seriousness of the situation strikes like lightening. 

For the first week in the hospital, I have one major goal, to be in a safe place to cry. I wait and participate as the case managers lead us through topic after topic. We're approaching the weekend and still no tears. When will I feel relief? Finally they come. Tears- wave upon waves in great heaves that could fill buckets. What finally did it? What cracked the protective shell? First it was being seen by Jane. In the movie 'Avatar',there is a statement of recognition, love and compassion, "You see me."  Being 'seen' touches my essence. Later the same day, I tap into anger. How? Someone in a meeting perceives me as "being entitled". That one really gets me. Entitled. Damn right. OCD. I wouldn't get the word out of my head all weekend.

Here's the thing about entitlement. It's either sourced out of low self-esteem or high self-esteem. I am entitled and so aren't you! Entitled to the highest quality medical care. Entitled to be treated with respect. Entitled to love and compassion. Entitled to be myself. Entitled to security. Yes, entitled.

During the sweltering drive home, powerful emotions boil over. My Irish is up! A cooling dip in the community pool refreshes my soul, restoring some balance. Being seen. Being entitled. Being embraced. Being with friends/loved ones whether via email, text, telephone, visits or an outing. These are all forms of kindness that eventually leads one out of hell on earth. Recovery from any illness is impossible to do alone. All praise and honor to those who do the work of the Lord and our Blessed Mother here on Earth. Gracias!










Blogs and Internet Sites

Though I was not writing much this summer, I was reading and researching. Of course, I'm not the only blogger writing about the spiritual journey of an individual with a psychiatric medical condition. There are other voices in the wilderness. Many have "monetized" their blogs and have become affiliated with larger sites, garnering a wider readership. This could happen to me, too. What fun that would be. Getting paid to write about a subject I know intimately. You may want to check out these sites for inspiration and information. Sharing is a good thing.

Beyond Blue by Therese Borchard (Click on the Blogs Tab)

Middle Age Suicide — The Good Men Project Magazine


Reach for the Stars (Jayzee's Story)

Depression TV by WebMed







24 August 2010

Summer 2010

And so the summer is rounding the corner to Labor Day. Two weekends left before the community pool closes and the beach parking fees are suspended. The beach club set is packing up for another year. Chairs, umbrellas, towels and sporting equipment are stored away until next year. There are some goodbyes to cherished summertime friends until we meet again on the sands to catch up with the births, deaths and marriages within our clans. The collegiate adults among us, can't wait to return and arrive on their campuses. We say adios to them and catch you on parents weekend and over the holidays. Don't forget to write or email or text. Go have fun, for these are the days of your lives, to make memories and friendships that will sustain you throughout your lives. It's quite joyful to watch your eyes sparkle and broad smiles crease your faces as you anticipate the start of another school year. Go in peace and don't forget to get an education in the process!

For me, dear readers, this has been a long difficult summer with health challenges. A serious depressive episode, long in the work, gripped me and sent me spiraling downward. Crashing. What triggered it, you may wonder? With bipolar depression, its hard to pinpoint exactly when or where or why an episode begins. It just is, what it is. (Personally, I deplore that statement, but there are occasions where it's fitting.) This summer was one of them.

I've made no secret about being partially hospitalized. I believe being honest without burdening others is what's important. However, the triggers were multiple and it was time for me to face a new reality and not delude myself any longer. I'm getting too old for that. Time is too precious a commodity to waste on maintaining illusions and wanting things to be different. My desire is to live without anger, bitterness, shame or a need to manipulate people or situations. We all have a spin on our life stories, don't we? I chose not to have hurtful feelings control or influence my inner world. My journey here on Earth, at this time is history is a spiritual mission, not a secular one. That's been obvious to me for a very long time. So this summer, I put the baggage down that's accumulated over the past 15 years since I first was diagnosed and started treatment for this incurable, hereditary disease. Stigmas be damned!

Wait. It's treatable you've heard, but it is NOT like diabetes which it is compared to all the time. It is not like cancer or heart disease. It is far worse because it not only attacks the body (the whole body) but one's emotions, one's mind (if you will), and it mightily attacks the soul or spirit of the individual. No other disease packs the whammy of an attack on the spirit. Except maybe alcoholism or drug addiction. These two common afflictions are known as a duo-diagnosis of depression.

Thank God, for my dear grandmother who sat me and my siblings down, one by one, and told us explicitly that we carried the gene for alcoholism. We were warned and I heeded her warning. However, this summer I met a number of individuals of all ages and walks of life who were unable to avoid this tragedy. They are now sober and alcohol/narcotic free. They're hyper-vigilant with the support of AA/NA. However, there's no such nationwide - world wide organization for individuals with depression. However, go to an AA meeting and quickly one realizes that the elephant in the room, (not talked about)  is... Depression. Recovery from any illness is a process not an event. As any cancer survivor will tell you.

So the journey out of a severe depression is a not achievable without crying, feeling hurt and giving voice to anger. With a regimented routine, empathetic and compassionate professionals, an ever changing group of individuals fighting a common enemy, a commitment, determination and a reliable support system of friends and family, recovery is probable. It takes time, a lot more time, than you might guess.

So what did I learn this summer? First, I had to put my stoicism, stubbornness, and a self-reliant attitude aside. I needed help but in order to get help, I'd have to humble myself and ask for it, something I've historically have found difficult to do. I learned that being "high-functioning" doesn't mean denying myself a therapeutic medical program. I'd bumped along for way too many months and then was bombarded with a series of triggers beyond my control. I felt scared, being unable to care for myself, and surviving in isolation. This is no way to live but it is what depression does to people. Being able to tolerate way too much suffering, seen as "high functioning", courageous, and with an attractive public appearance is a handicap. Heeding the advice of my closest friends, I was able to be forthright with my doctor, who recognized my distress and sent me off to a local hospital, as a day-patient.

So while everyone else went on or prepared for their summer vacations, I was doing a daily tour of the psychiatric departments. Two different hospitals. Two cities. Two medical programs. Four weeks. How or why these day hospitalizations work, baffles me. But I'm regaining my strength, able to go out and socialize plus I've collected a green folder, an inch thick of handouts, and many inspiring insights to write about.

My desire and pleasure in writing has returned. I missed our tea times together. Two weeks until Labor Day. I'm on "vacation" so I intend to take advantage of it. Stay tuned.





13 August 2010

Letter to Congress: Physicians and Hospitals Need Protection Too

I'm back. Still recuperating. Lots to share but I'm on "vacation" at the moment. Here's some food for thought especially if you require medical care now or in the future. Letter to Congress: Physicians and Hospitals Need Protection Too

02 August 2010

Indifference

The fruit of the Spirit is love, joy, peace, patience, kindness, generosity, faithfulness.-Galatians 5:22
She enters the room where we are gathered. All light, energy and focus. Unlike other presenters, she moves into the area where we sit, intent with her eye contact. Fashionable glasses frame her brown eyes but it's her Presence that catches my attention. Enthusiasm.  Directness. Compassion. Intelligence. All this and more are reflected in her eyes and body language as she leans into the space of unseen boundaries and introduces herself as the Chaplain of the hospital. The topic listed on the agenda for Friday is "Spirituality".

As she explains her role, her vocation, as the only Chaplain at the hospital, she carefully outlines how her services are prioritized. Everywhere she is in demand, except she is only one person. Thus her time is concentrated on where she is needed the most. ER. Trauma. ICU. Catastrophic situations where death has arrived or is imminent. Quite a calling in service to the Divine. She reiterates a story, that she must have shared before.

Upon her arrival at the hospital, every department called requesting help. Oncology. Children. Geriatrics. Maternity. You name the branch and specialty of medicine, they all had a need. However, recognizing that she could not spread herself too thin, she had to draw the boundaries where she her presence could serve those in the most traumatic, life-altering situations.  She needed to confine her ministry to those most in need. After settling in, she made her way to the psychiatric department and inquired as to why they had not contacted her. The director, let's call her Mary O'Malley, asked why in the world would they need her? It seems, Mary, like so many others of a certain generation and mindset are confused about the differences between religion and spirituality. Religion is the institutionalization of a system of beliefs. Spirituality, in my opinion, are the qualities of the Spirit, that which nurtures the soul.

Grabbing a marker for the white board she inquires about being human. There's the body, the mind, and the spirit or soul. Mental illness, unlike other diseases, attacks all three: the body, the mind and the spirit all at once! Ah, hah, I say to myself, she really gets it about mental illness! No other disease except depression attacks the soul, the spirit of an individual as it ravages the body, the mind and its emotional state. To have one's spirit sickened by this disease is its most devastating element.

To underscore her point she asks us to describe how our spirit feels when it is in depression. The group members offer; hopelessness, grief, despair, resignation, weak, helpless, isolated, suicidal. "What else? What's the worse attack of them all?" I'm sitting there knowing, I know the answer to this question, but I'm unable to pull it from my memory. She waits. There is silence. Then she turns to the board and writes one word:  INDIFFERENCE!

Yes, that's it. Indifference is the complete opposite of love and faith. Some falsely believe that hate is the opposite of love or that fear is the opposite of faith. But it's not. For love and hate are passionate feelings. Indifference is the domain of man's inhumanity to man. Indifference is the domain where suicide and murder occurs. Indifference is devoid of and is the renunciation of the fruits of the Spirit. May none of you ever be or feel indifferent for this is the saddest state of them all.

Thank you, Jane for your inspiration, wisdom, compassion and reigniting the spark within my soul.



Indifference, unconcern, listlessness, apathy, insensibility; all imply lack of feeling. Indifference denotes an absence of feeling or interest; unconcern, an absence of concern or solicitude, a calm or cool indifference in the face of what might be expected to cause uneasiness or apprehension; listlessness, an absence of inclination or interest, a languid indifference to what is going on about one; apathy,  a profound intellectual and emotional indifference suggestive of faculties either naturally sluggish or dulled by emotional disturbance, mental illness, or prolonged sickness; insensibility,  an absence of capacity for feeling or of susceptibility to emotional influences.